Day 28 Post Transplant

Today is Jared's 28th day post transplant. We are still at the hospital, but Jared is doing much much better. So, pretty much we came to the hospital on Saturday morning and the doctors were extremely concerned by how high Jared's liver function was. Over the last couple days Jared has been given lots of different medications to try to lower his liver levels as well as just being very closely monitored. They have now concluded today that Jared has something called SOS Disease. This means that Jared's liver was very hurt and damaged from the amount of Chemotherapy that he was given before his transplant. This happens to about 10% of all people that have a Stem Cell Transplant, so it was not a huge surprise to doctors but they were still very concerned. The main drug that Jared has been getting is what they use when someone comes into the hospital and has overdosed on Tylenol. On Saturday when he was first given the drug he had a crazy reaction to it! He was having trouble breathing, his head was pounding, he got extremely hot and started vomiting. It was super super scary the first time that I had to rip the emergency cord out of the wall and 10 nurses ran into our room and hooked Jared up to oxygen and gave him a huge dose of benadryl. Now before and during every does Jared is given benadryl so this will not happen again. 

The doctors came in this morning and they are very happy that Jared's levels are trending down and pretty quickly so they are hoping to give him one more dose of his medicine and then hopefully late tomorrow night Jared will be discharged!! We are very excited that he is getting out even faster then we were hoping for!! The last few days have been full of uncertainties and fear, but we are happy with the outcome! Jared is feeling pretty good otherwise, he is working still on eating more and walking as much as possible. Keep praying that Jared's liver continues to heal, his swollen fluid filled tummy will go down (right now they think he has about 7 to 8 extra pounds of fluid in his body)! We are very grateful that Jared is young and that his body was able to handle this unexpected complication. The Doctors seem amazed at how well he is healing compared to many other cases they have seen! Hopefully each day Jared will just continue to feel better and better!